How One Woman With a Very Rare Disease Secured a Clinical Trial​

How One Woman With a Very Rare Disease Secured a Clinical Trial​

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How One Woman With a Very Rare Disease Secured a Clinical Trial​

August 18, 2026

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 Through sheer determination, Neena Nizar has become the first patient in a clinical trial testing a treatment for her disease — one so rare it affects just 30 people worldwide.  

Creator: The New York Times (NYTHealth)

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